Thursday, February 7, 2008

Crazy monday!

Well, Monday morning we headed up to Seattle at 3:30 in the morning like usual, with Deanna driving me trying to sleep some :-) and Shelby in the back seat playing! Got all the tests done and met with Dr Edelman.  My PFT's were about the same as the last four weeks or so. Dr Edelman said that it may be a sign of some rejection and said that he wanted to schedule a CT scan and a bronch so he could do a biopsy. With having both test done it would determine if it was the start of rejection and if so, that he would start a regiman of a high dose of prednisone, iv form that would be done in the hospital for three days, which would mean i would have to stay in the hospital for three days. The bronch was scheduled at 3:00 but we got done with the CT scan early so they started the bronch at around 2ish. This was my third bronch that i have ever had and the first time ever having a biopsy. When they do a biopsy there is a higher risk that they could puncture the lung. Well that is what kinda happened they dont call it that they have another name for it and i am not going to try to spell it either. When that happens normally they let some one go home and just monitor it, but since my lungs are brand new they wanted to keep me over night to make sure it corrected itself and if not they would have to put chest tubes in to correct it, which didn't sound fun at all. So needless to say we were not prepared for the over night stay. Shelby had been up since 3am and Deanna had been up since 2 so I wanted them to head home to get rest and I didn't want Shelby to miss school on Tuesday. It was a very emotional time because Shelby didn't want to leave me she saw the docs put a 02 mask on me and it made her think back to when I was sick so she thought I was sick again and needed new lungs again. It broke my heart watching her being upset and trying to figure out what was going on. Deanna and Shelby finally left around 6:00 and I headed up to the 4th floor for my night stay. Lee headed up and got there around 9:30 and stayed the night with me which was very nice. He didn't get much sleep not because of the chair he had to sleep in but he was on the phone with Holly from 11ish to a little after 3 in the morning wow! My lung corrected itself so that was good. But we still had to wait till the biopsy report came back to determine if it was rejection or not. The docs came in around 1:30 the following afternoon and said everything looked good my air ways were very clear and everything looked real good except some slight inflammation and that was about it. So the plan is to just watch my pfts that i do at home and see them on the 25th. I think the word rejection is a scary word for Deanna but some reason I wasn't that scared when he said that I was more disappointed then scared. maybe because I have talked to tx patience about rejection and stuff. Next time we go up were gonna take an over night bag so we're prepared for something like this again. I am glad that I take all my meds with me when I do these visits because it was hard to get all my meds believe it or not when I was in the hospital. Well thats it for now life is good and I will post soon! Thank you for all the messages and continued prayers they mean alot to me!